![]() ![]() Prescribers should check each drug’s SPC for current licensed indications. In this guideline, recommendations are marked with a note if drugs do not have a UK marketing authorisation for the indication in question at the time of publication. The guideline will assume that prescribers will use a drug’s summary of product characteristics (SPC) to inform decisions made with individual patients. Changes to wording or structure were made in order to fit the recommendations into this guideline. Where this occurred, the Guideline Development Group was careful to preserve the meaning and intent of the original recommendations. This guideline covers the care provided by primary, community, secondary, tertiary and other health and social care professionals who have direct contact with, and make decisions concerning the care of, autistic adults.Ī number of recommendations in this guideline have been adapted from recommendations in other NICE clinical guidelines. The Guideline Development Group recognises, however, that different individuals and groups prefer a variety of terms for autism including autistic spectrum condition, autistic spectrum difference and neurodiversity (in recent Department of Health, National Audit Office and Public Accounts Committee documents, ‘autism’ is used to cover all of these terms). In this guideline ‘autism’ refers to ‘autism spectrum disorders’ encompassing autism, Asperger’s syndrome and atypical autism (or pervasive developmental disorder not otherwise specified). Even if they manage to obtain a diagnosis they may receive no follow-up support because of the absence of appropriate services or an agreed care pathway. However, many adults have difficulties accessing a diagnostic assessment. This lays the foundation for a long-term understanding between the autistic person, their family, partner or carer(s) and the professionals supporting their needs. When the diagnostic assessment process works well, professionals, the autistic person and their family, partner or carer(s) communicate right from the start and the autistic person is involved in the decisions relating to their care. These factors contribute to delays in reaching a diagnosis and subsequent access to appropriate services. There is wide variation in rates of identification and referral for diagnostic assessment, waiting times for diagnosis, models of multi-professional working, assessment criteria and diagnostic practice for adults with features of autism. Some may have contact with the criminal justice system, as either victims of crime or offenders, and it is important that their needs are recognised. In addition, autistic people are more likely to have coexisting mental and physical disorders, and other developmental disorders. Their condition is often overlooked by healthcare, education and social care professionals, which creates barriers to accessing the support and services they need to live independently. The features of autism may range from mild to severe and may fluctuate over time or in response to changes in circumstances.Ī significant proportion of autistic adults across the whole autistic spectrum experience social and economic exclusion. Autistic people also commonly experience difficulty with cognitive and behavioural flexibility, altered sensory sensitivity, sensory processing difficulties and emotional regulation difficulties. ![]() The way that autism is expressed in individual people differs at different stages of life, in response to interventions, and with the presence of coexisting conditions such as learning disabilities (also called ‘intellectual disabilities’). The Autism Spectrum Quotient (AQ) fills this data gap with a quick measure of traits associated with autism.Autism is a lifelong neurodevelopmental condition, the core features of which are persistent difficulties in social interaction and communication and the presence of stereotypic (rigid and repetitive) behaviours, resistance to change or restricted interests. Yet challenges remain, especially because autism is a heterogeneous condition, with a variety of possible difficulties that may require intervention or treatment, each manifesting differently for each patient.ĭespite autism’s increased presence in many healthcare specialties, the ability to meet a patient’s specific needs is often compromised because individual characteristics affect outcomes (Howlin, 2021), yet are rarely measured. Scientific and clinical understanding of autism has evolved rapidly in recent years, and much is now known about how to reliably diagnose the condition, its causes, its effects, and the effectiveness of potential interventions. Healthcare practitioners are seeing more patients with autism than ever, thanks to increased awareness about the condition, especially among adults, females, and higher-functioning individuals (Russel et al., 2021). Autism Spectrum Quotient (AQ) Questionnaire in ![]()
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